The one who started it all…

One year ago, Mikayla Grace Terrill, was born into this world.  She is the one who inspires us every day to carry out the mission of Mikayla’s Grace.

I knew when we conceived Mikayla that she would change our lives…I just had no idea the impact she would truly have on us and so many others.  We are so thankful for all of the supporters of Mikayla’s Grace who help us in keeping her memory alive and by doing so, ensure that other parents in the same situation we were in one year ago today have special memories with their child(ren).

“A butterfly lights beside us, and for a brief moment it’s glory and beauty belong to our world.  But then it flies on again, and although we wish it could have stayed, we are so thankful to have seen it at all.”

Of course we wish she would have stayed.  But, nonetheless, we are glad to have seen it all.

Happy Birthday Mikayla Grace!
We love and miss you so much, more than words could possibly ever explain. We do believe that the place you are celebrating is far more great than we can even imagine and we know that someday we will be together again.  Thank you for all the gifts you’ve given Daddy and I this last year.  As long as we live, you will live.  As long as we live, you will be remembered.  As long as we live, you will be remembered.  You will live forever in our hearts and will always be our little girl.
Love, Mommy and Daddy

Thank you to those of you who have done acts of kindness in Mikayla’s name.  It truly does make a difficult month so much easier for us to know that others may smile because of the impact of our little girl.  We will still have a few things planned for our Random Acts of Kindness and at the end of the month I will share them all with you.

Today I would like to share a video that Kristie at Anchored by Hope made for Mikayla.

Do Not Be Afraid Of Our Tears

I was reminded today of a post that I’d written as a guest blogger last year for Half-Pint Resale as a way to reach out to those who may not have experienced pregnancy or infant loss to help them understand what to do in those situations and I wanted to include it on this website as well.

I wrote this about 9 months after our daughter Mikayla died, and just a month before we found out that our third child, Chase, had joined his sister in Heaven after just 10 weeks of carrying him.   We had just barely begun planning for our first donation with Mikayla’s Grace.  One our our goals with Mikayla’s Grace has always been to serve not only the families who have a baby in the NICU or are going through the loss of a child, but also those family and friends that support those parents.  You can see the most recently updated list of resources on ourResource Page.

Melissa Terrill is our guest blogger, taking on a topic that often fills so many of us with anxiety.  Melissa and her husband  lost their daughter nearly 9 months ago after she was born at the tender age of 24 weeks.  Melissa is a dear friend of ours and of Half-Pint Resale, and offered to write this post to give us all the tools – the words – the permission some of us may feel we need – to be there for our friends and family who are going through such a tragedy.  She speaks with compassionate but straightforward truth, and we encourage you all to read and to share this important information, so that we can be community and family for one another.

Melissa and Mike and their son Jonathan have also begun a truly wonderful non-profit in honor of their daughter, called Mikayla’s Grace, which seeks to support families with a baby in the NICU and those who experience the death of an infant at Madison area hospitals.  The non-profit provides provides  NICU care packages and angel memory boxes, offering both practical and emotional support for the parents.  There are many ways you can get involved – read on.

-EC and LS

According to 2004 statistics issued by the CDC 15.6% of pregnancies in the United States ended in either a miscarriage or stillbirth.  Which means that most of us have either been directly affected or  know someone who has been affected by the loss of an infant.

My family has experienced this heartache first hand, when our second child Mikayla Grace was born prematurely for unknown reasons at only 24 weeks and 5 days last June.  In one day, our dreams as we knew them came crashing down, when we learned that our daughter would not survive after being alive for only 36 hours.  You can read more of our story here. The world suddenly became a very lonely place, one in which our “new normal” was so unexpected that even those closest to us were at a loss of what to do.

I have learned a great deal through this experience, and I hope that I can share a few things that might help you if someone in your life experiences the death of their child.  It is hard to know what to say to a grieving parent, and I’m almost certain that before Mikayla died I wouldn’t have had a clue either. Our own fear of loss can render us immobile.  One of the most difficult things that a bereaved parent deals with is when people say nothing about the the child that is on their minds every moment of the day.  I remember thinking that it seemed like others had returned to their lives so quickly, leaving us to deal with our grief on our own in many ways.

It was as if people felt like they had to think of the “perfect” thing to say, and if they couldn’t, they just said nothing. There is no “perfect” thing to say. There is nothing you can say to heal the grief of losing a child. But acknowledging and supporting grief is a way to help healing. Please know that the effort of talking about the baby, the loss, and the sadness will be appreciated, even if it’s not “perfect.”  I love this quote by Elizabeth Edwards, whose firstborn child died at age 16,

If you know someone who has lost a child or lost anybody who’s important to them, and you’re afraid to mention them because you think you might make them sad by reminding them that they died, they didn’t forget they died. You’re not reminding them. What you’re reminding them of is that you remember that they lived, and that’s a great, great gift.

Bereaved parents need your loving support more than ever. Please do not stay away or ignore the loss.  Not speaking about it does not lessen its reality. Bring up the subject, and be prepared for tears. Nothing you say will ever make the bereaved parent sadder than the reality of losing a child. Simply allowing a safe space for them to grieve without denying that grief is all that’s required of you. Remember, it is usually the simple things you say or do that mean so much.

There is sacredness in tears. They are not the mark of weakness, but of power. They speak more eloquently than ten thousand tongues. They are messengers of overwhelming grief…and unspeakable love. ~ Washington Irving

It is important to remember, as a friend or family of bereaved parents, that the parents only grieve because they loved so deeply.  Their tears speak this unspeakable love, do not be afraid of their tears.  Do not be afraid to speak the name of the baby that they still love even though the baby is no longer with us.

In discussing this topic with a friend of mine who has not experienced the death of her child, she said ”the two things I would have LOVED to have known immediately are:

  1. The most important thing to ANY bereaved mom is to know that you remember and care about her baby.2.  The right thing to do or say is SOMETHING.  The only real mistake you can make is saying or doing NOTHING.”

Contrary to the widespread notion that “getting over” loss depends on “letting go” of the person who died, many people find that successfully going on with their lives includes finding a new way to feel connected to the person who died.  When I found this on the Sweet Dreams Our Angels website I really connected with it.  I knew that I wanted Mikayla and Chase to have a legacy that would carry on to help other families that have also experienced the loss of a child, and that is why I started our non-profit, Mikayla’s Grace.  To find out how you can help, go here.

Resources for Bereaved Parents and those who want to support them:
 
Thankfully there are many resources available for bereaved parents and their family members today, and we are fortunate to have a lot of local support groups in Madison and even a doula service especially for families who experience a loss in Madison:
Keep in mind that although most parents will grieve differently, most bereaved parents would appreciate you doing something.  The only wrong thing to do is nothing.  I hope that by sharing my story it will help others that are going through this journey as well.

Special Ways to Remember Babies at the Holidays

There are some really great things going on to support bereaved parents during what can be a difficult time at the Holidays.  If you are a bereaved parent yourself I encourage you do to something in memory of your baby during this time, and Fran’s 12 days of Christmas (posts from Christmas 2012) has some amazing ideas!

If you are not a bereaved parent yourself but have someone in your life who has experienced the loss of a child this is an important time to let them know that you remember their child.  Most parents are still grieving the loss of their children who are no longer here at the holidays, even if it has been several years since they’ve been gone.  Here is an article on What to Say to a Grieving Family at Christmas.  The Lost For Words Card Line is a simple way to send a message to a grieving family, and the 12 days of Christmas ideas can easily be incorporated as gifts as well.  Carly Marie’s Christmas Beach Wonderland has personalized images you can purchase.  The smallest gesture can make the biggest difference, and acknowledgement that you remember is often enough to help that bereaved parent.